July 2, 2014

• White Flag

  June in a nut shell...

  • Kei has PMDD (think PMS on crack)
  • Kei was emotionally stable for 1 week... 1, all too short, week in June.  We almost got used to her being stable when the depression hit again.
  • Kei's medication was adjusted which was NOT a good option because that threw her into over dose status.
  • Kei likely has some other issues that we will be working with the doctor on.
  • Joshy's immune suppression med was lowered.
  • Immune suppression med dose effects kidney functions AND epilepsy med balance
  • GOOD NEWS - Joshy's diuretics are now working VERY well... as is the washer... MEMO to self, need to buy new water proof sheets because over washing creates holes which then means the bottom emergency sheet gets wet...  Probably should buy a few more outfits as well!
  • Bad NEWS we do not have good seizure control AT ALL.
  • Joshy's temp balance is now out of whack because everything else is out of balance.
  • Bekah's braces are off.  Next step a plastic tooth cover - for lack of a better word - to hold the teeth in place...  We are now on the 2nd such cover.  IF things are looking good at her next appointment we might actually get into checkups ever 3 months instead of every week or two.
  • Kei's braces are still in process... provided she is well enough to make her checkups to have them checked.

  • Computer crashed.  Pulled the hard drive, but having trouble accessing the files I need for English Camp.
  • Attempting to get the English Camp menu inputted and sorted and recipes entered and shopping list compiled.
  • School?!?  Oh yeah we are homeschooling...
  • WORK.... We have a new student  She is coming to a regular class and wants a private lesson, too...
  • English camp is coming... lots of details to iron out.  Looking like a really good turn out this year
  • Hospital has a brand new building.  All inpatient, therapy, & respite care wards are moving there.  Staff is being shuffled around some.  THIS means Joshy has to have a practice day before he can go into short stay during camp.
  • No I have not gotten a newsletter written yet.

  Is is vacation time yet????????

  Well, the washer just beeped.  Better get those sheets out so they will be dry before bed time, since I won't have time to go buy new ones before they are needed.  Oh and meds are now late.......

   

  • 7:47 pm
  • 4 Comments