January 29, 2015
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Digital Age
Digital things are nice. They work well...most of the time.
However...
Yesterday Joshy caused a hospital wide search for a good old fashion thermometer because digital thermometers just do not register as low as Joshy's temp seems to go...
YES, Joshy is playing Popsicle man again.
At Monday's regular checkup, I mentioned that he has been waking up quite a lot at night really fussy & acting like he is in pain. A couple of numbers in his lab report were elevated... you know the numbers that are usually normal - there are a few of those. We talked about the possibility that his gallbladder is acting up (we found gallstones last winter during one of his club med vacations). Doctor scheduled an echo for tomorrow morning to check things out.
Tuesday, Joshy actually slept... and slept... and slept until I unceremoniously drug him out of bed for a dentist appointment. Then in the afternoon he was seizy, cold, & sleepy :/
Wednesday morning he seemed cool, but somewhat playful. However, about school time he started going down hill. So I took him back to the doctor... which lead to the search for an old fashion thermometer. His temp was 31C / 87.8F. One nurse used a laser (?) thermometer, but it didn't record accurately until she switched it to the environmental setting. Sometimes I think this boy just wants to keep everyone on their toes!!
Today he has been cold - temps in the low 30's - and has slept most of the day away. This evening he threw up.
Praying tomorrow's echo will give us a clue as to what is going on. I am also glad they J's regular doctor is in out patients tomorrow, because I AM going to have a chat with him. One thing I know that needs to be addressed is reflux meds. The medication he has been on can cause kidney trouble. In light of all the kidney issues we have been battling, the doctor decided to ween him off of it. Monday was his last dose. The extra seizures may not be related. The pain at night may not be related. However, throwing up is a sigh. Throwing up blood is a stronger sign that he NEEDS something for reflux.
As I type this out... thinking through recent events... I am seriously wondering if the restless night could be from the lower dose. Then when the med was stopped it has thrown him into crisis. When he doesn't feel well he has more seizures. Sometimes those seizures strike near his thermostat, which knocks it out of whack. It takes a good 3-4 hours to reboot - provided he doesn't have another similar seizure during the reboot process...
HMMMMMMM.....
Praying that tomorrow we, A) come home, with, B) a new prescription...
Comments (3)
Praying for Joshy and you too mom. God bless.
Praying for both of you. I'm seeing a bit better, but when I saw Josh was sick again, I made the print on the computer bigger so I could read it.
Praying for you. I see it's been awhile since I visited. Hope things are going good today. Maybe when you come home we should have a Xanga meeting with ata_grandma.